[{"command":"settings","settings":{"pluralDelimiter":"\u0003","suppressDeprecationErrors":true,"ajaxPageState":{"libraries":"eJxLzi9K1U8pKi1IzNFLyUzMyU_XS8xKrNApSCxKTC9KLMgohskiRPRK8wpKk3IyizNSUwAiWxkF","theme":"upd","theme_token":null},"ajaxTrustedUrl":[],"user":{"uid":0,"permissionsHash":"22dcdfba032631beed6427d0f24bf0844dfb9bda62deaafe5cec74da1a30ffe0"}},"merge":true},{"command":"add_css","data":[{"rel":"stylesheet","media":"all","href":"\/sites\/default\/files\/css\/css_vc5cLuh4rhAN6znJCXfU-8zQmHR1yNnv8GD6Q85yEqA.css?delta=0\u0026language=en\u0026theme=upd\u0026include=eJxLzi9K1U8pKi1IzNFLzEqs0ElGEkjJTMzJT9cpSCxKTC9KLMgohkkgRPRK8wpKk3IyizNSUwBitB2R"}]},{"command":"add_js","selector":"body","data":[{"src":"\/sites\/default\/files\/js\/js_XNDFJOhCzYAJD-zg18t5sJXWQM2miB78WMDzbwhPN0g.js?scope=footer\u0026delta=0\u0026language=en\u0026theme=upd\u0026include=eJxLzi9K1U8pKi1IzNFLyUzMyU_XS8xKrAAAajEI0Q"}]},{"command":"openDialog","selector":"#drupal-modal","settings":null,"data":"\n          \u003Ca href=\u0022#\u0022\u003E\u003C\/a\u003E\n      \n  \u003Cp\u003E\u003Cimg alt=\u0022News stories about care.data and gpdpr\u0022 data-entity-type data-entity-uuid src=\u0022https:\/\/understandingpatientdata.org.uk\/sites\/default\/files\/2025-07\/Screenshot%202025-07-22%20171445.png\u0022 class=\u0022align-center\u0022\u003E\u003C\/p\u003E\n\u003Cp\u003E\u003Cspan\u003E\u003Cspan\u003E\u003Cspan\u003E\u003Cspan\u003ETwo attempts to centralise GP record data into national databases for secondary use - care.data in 2014 and General Practice Data for Planning and Research (GPDPR) in 2021 - aimed to improve the efficiency of data collection, make better use of GP data for research and planning, and reduce the burden on GPs.\u003C\/span\u003E\u003C\/span\u003E\u003C\/span\u003E\u003C\/span\u003E\u003C\/p\u003E\n\u003Cp\u003E\u003Cspan\u003E\u003Cspan\u003E\u003Cspan\u003E\u003Cspan\u003EHowever, in both cases, lack of sufficient public engagement and communication led to criticism from professional bodies, watchdogs and privacy experts. This was further exacerbated by headlines and media stories that emphasised perceived risks. For instance, news stories in 2014 featured headlines like \u2018\u003Ca href=\u0022https:\/\/www.bbc.co.uk\/news\/health-25919399\u0022\u003EAre your medical records in danger\u003C\/a\u003E?\u2019 and emphasised plans for data extracted from GP records to be available to commercial researchers (described as \u003Ca href=\u0022https:\/\/www.theguardian.com\/society\/2014\/jan\/19\/nhs-patient-data-available-companies-buy\u0022\u003E\u2018buying information on patients\u2019\u003C\/a\u003E in one article). In 2021, news headlines often referred to the GPDR scheme as the \u2018\u003Ca href=\u0022https:\/\/www.theguardian.com\/society\/2021\/aug\/22\/nhs-data-grab-on-hold-as-millions-opt-out\u0022\u003ENHS data\u003C\/a\u003E \u003Ca href=\u0022https:\/\/www.independent.co.uk\/news\/health\/nhs-data-grab-tower-hamlets-b1911923.html\u0022\u003Egrab\u2019\u003C\/a\u003E and emphasised \u003Ca href=\u0022https:\/\/www.ft.com\/content\/9fee812f-6975-49ce-915c-aeb25d3dd748\u0022\u003Esensitive information being shared with third parties\u003C\/a\u003E with little information provided about pseudonymisation and safeguards in place.\u003C\/span\u003E\u003C\/span\u003E\u003C\/span\u003E\u003C\/span\u003E\u003C\/p\u003E\n\u003Cp\u003E\u003Cspan\u003E\u003Cspan\u003E\u003Cspan\u003E\u003Cspan\u003EThe controversy around the roll-out of GPDPR led to an 80% increase in the national opt-out rate (from 2.77% to 4.97%) in the month after the initiative was launched.\u003C\/span\u003E\u003C\/span\u003E\u003C\/span\u003E\u003C\/span\u003E\u003C\/p\u003E\n\n\n      \n    ","dialogOptions":{"width":"70%","height":"auto","dialogClass":"highlight-modal-dialog","closeOnEscape":"true","closeText":"Close text","buttons":{"button1":{"text":"Close","id":"close-button","onclick":"jQuery(\u0027.ui-icon-closethick\u0027).click()"}},"modal":true,"title":"care.data and GP Data for Planning and Research","classes":{"ui-dialog":"highlight-modal-dialog"}}}]